A WOMAN was diagnosed with a killer disease after not being able to read a single letter during her eye test.
Gemma Hillier, 45, had thought her vision was fine, completely unaware of how bad it had become.
But after struggling to read any of the letters during an eye test at her local opticians, she was referred for further testing.
In November 2023, Gemma was told she had a brain tumour that would need to be removed.
A brain tumour is the leading cause of cancer-related deaths in under-40s
It came after the teacher, from Northampton, lost her dad, Rod, 73, to a brain tumour in 2018.
She said: “Brain tumours have rocked my world in the last six years.
“It is hard to believe that I am living with a brain tumour. They said that I could have been living with it for years.
“I could have had it when my dad had his.”
It was September 2023 that Gemma went to her local opticians for a standard eye test.
Gemma didn’t experience any symptoms until she went in for a check-up at her local optician.
She said: “When I sat in the chair, I couldn’t read any of the letters which I found strange as I thought I had good vision.
“I then had further tests, including a visual field test which I failed.
“My optician got her colleague to look at my eye, and they referred me to an eye clinic.”
After being referred to the eye clinic, Gemma said she went “back and forth” with specialists.
She went privately to an ophthalmologist who referred her for an MRI scan, which revealed her tumour.
She said: “No one seemed to be in a rush to fix me or find out what was wrong so eventually I went to a private ophthalmologist who after only five minutes into the appointment noticed something wasn’t right and sent me for an MRI.
“Four days after the MRI, I had the phone call to say they had found a brain tumour.”
By this time, Gemma suggests she was experiencing symptoms and said she felt relief that she wasn’t imagining it.
“Over this time my headaches were getting worse and worse,” she says.
Gemma was referred to John Radcliffe Hospital for surgery to remove the tumour which was wrapped around her optic nerve.
She said: “I was told surgery was really my only option to save the sight in my right eye as the tumour was growing.
“Christmas came and went and then in February 2024 I had my resection of my tumour.
“I spent time in the ICU, the same one that my dad had been in six years ago, and then had many months off work to recover from the surgery and get myself fit and healthy again.
“The surgery was a success and 90 per cent of the tumour was removed.”
After the surgery, Gemma was told her tumour was a grade 2 meningioma and has regular check-up scans to monitor it for growth.
Meningiomas are the most common type of primary brain tumour, according to Macmillan Cancer Support.
They make up around a third of all primary brain and spinal cord tumours in adults in the UK, and usually affect people over the age of 35.
Meningiomas can often be present in the brain without causing any symptoms for many years.
Gemma said it is “crazy” living knowing she has a brain tumour but considers herself lucky.
She said: “My tumour is grade 2 and so I’m currently having regular scans to check its growth.
“I’ve been told by my surgeon that if it does grow, I’ll need radiotherapy.
“The past year has been tough both physically and mentally.
“But I know I’m one of the lucky ones. It could have been so much worse- just like it was for my dad.”
According to The Brain Tumour Charity, a brain tumour is considered the biggest cancer killer of people under the age of 40, meaning it is the leading cause of cancer-related deaths in this demographic.
Catherine Fraher, Director of Services and Digital Health at The Brain Tumour Charity, said: “We’re really grateful to everyone who shares their – often heartbreaking – story to raise awareness of brain tumours.
“We know that every family deals with a brain tumour diagnosis and its aftermath in their own unique way.
“That’s why The Brain Tumour Charity offers support to anyone who needs it. It’s so important for them to know that they are not alone.
“You can find out more about our specialist teams by calling our Support and Information Line [on 0808 800 0004 or via our website – https://www.thebraintumourcharity.org/.”
More than 12,000 Brits are diagnosed with a primary brain tumour every year — of which around half are cancerous — with 5,300 losing their lives.
The disease is the most deadly cancer in children and adults aged under 40, according to the Brain Tumour Charity.
Brain tumours reduce life expectancies by an average of 27 years, with just 12 per cent of adults surviving five years after diagnosis.
There are two main types, with non-cancerous benign tumours growing more slowly and being less likely to return after treatment.
Cancerous malignant brain tumours can either start in the brain or spread there from elsewhere in the body and are more likely to return.
Brain tumours can cause headaches, seizures, nausea, vomiting and memory problems, according to the NHS.
They can also lead to changes in personality weakness or paralysis on one side of the problem and problems with speech or vision.
The nine most common symptoms are:
If you are suffering any of these symptoms, particularly a headache that feels different from the ones you normally get, you should visit your GP.
Source: NHS
