FTC: 23andMe buyer must honor firm’s privacy promises for genetic data
Federal Trade Commission Chairman Andrew Ferguson said he's keeping an eye on 23andMe's bankruptcy proceeding and the company's planned sale because of privacy concerns related to genetic testing data. 23andMe and its future owner must uphold the company's privacy promises, Ferguson said in a letter sent yesterday to representatives of the US Trustee Program, a Justice Department division that oversees administration of bankruptcy proceedings.
"As Chairman of the Federal Trade Commission, I write to express the FTC's interests and concerns relating to the potential sale or transfer of millions of American consumers' sensitive personal information," Ferguson wrote. He continued:
As you may know, 23andMe collects and holds sensitive, immutable, identifiable personal information about millions of American consumers who have used the Company's genetic testing and telehealth services. This includes genetic information, biological DNA samples, health information, ancestry and genealogy information, personal contact information, payment and billing information, and other information, such as messages that genetic relatives can send each other through the platform.
23andMe's recent bankruptcy announcement set off a wave of concern about the fate of genetic data for its 15 million customers. The company said that "any buyer of 23andMe will be required to comply with our privacy policy and with all applicable law with respect to the treatment of customer data." Many users reacted to the news by deleting their data, though tech problems apparently related to increased website traffic made that process difficult.