CVT Update

In early March, I was diagnosed with Cerebral Venous Thrombosis. That's a fancy doctor way of saying I have a blood clot on my brain. The day I got out of the hospital, I recorded this.

For several weeks, there really wasn't much to update. I take blood thinners to prevent new clots from forming and my existing clot from growing larger, and I pop acetaminophen for my headaches. Did I mention the headaches? It's ever-present with waves of more severe pain weaving in and out of my day-to-day. I always have a headache, but sometimes it's mild and easily ignored, while other times it's sharper and annoying af.

I finally met with my hematologist Thursday to find out if I have an inherited disorder of blood clotting. This gene mutation is actually in the family, and the best guess of most doctors involved (my family doctor, my neurologist, my hematologist, the ER doctor, etc.) is that I likely have this disorder, hence the blood clot on the brain before I turn 50. I sat down to get the results and she shocked me by using the n-word. She said my blood was normal.

To be honest, I was so prepared to find out I had this inherited gene mutation that I had already come to grips with the fact I'd be on blood thinners for the rest of my life. But all tests came back negative. Go figure.

Next week I'm getting another CT scan of my brain so the neurologist can tell me how things are progressing in there. One concern with the headaches not yet dissipating is that the blood clot is growing, but I'm not going to worry about that until my appointment Wednesday.

I've had enough of CVT.