Publicise crowdfunding platform for rare diseases, says Delhi High Court

The Delhi High Court on Friday suggested formulating a plan to publicise the crowdfunding platform created by the central government under the national rare diseases policy across all Navratna companies as well as the private sector.

Justice Prathiba M Singh, while dealing with a batch of petitions for treatment of children suffering from rare diseases, said although the platform became operational pursuant to an order passed by the court in 2021, it needed to be publicised to attract funding from the general public as well as corporate entities and public sector undertakings (PSUs).

Accordingly, it is directed that a plan be prepared for publicising the crowdfunding platform across all the Navratna companies and top 10 private sector companies at least, the court said.

The court said the details of the crowdfunding platform should be communicated to these entities to enable them to consider contributing under their Corporate Social Responsibility (CSR) account, and asked for the ..